If only I were referring to that TV show.
The first time I went I was really surprised to discover that women who had been healthy for over a year were still attending the group. There I was, bald, nauseous, and pissed that I had to go through cancer. Right in the thick of my treatment, I sat next to these women and listened to their stories.
Honestly, I couldn’t relate. From where I was sitting, they had what I most wanted: hair. They also had a clean bill of health. And yet, they were having trouble adjusting. Trouble dealing with the residual feelings cancer left them with when it vacated their bodies.
The thing I heard the most was anger, followed by confusion.
The kind you feel when you wake up from having napped too long on a summer
afternoon. You look at the clock and it says 6:30, and you panic, thinking you’re
late for work. It takes a couple minutes to sink in that evening has come, and
you didn’t get the notice.
Not having cancer is a little like that. You know you’re
well; your cells are working, humming like bees, and yet, there is worry, because
an essential part of you didn’t get the memo that you’re cancer free. In other words, in spite of the fact that I look healthy, I don't feel it. I still feel very much like I'm recovering from something big. Like my mind is just now sorting out all details of what my body has been through this past year. In playing catch up, I wonder: How long will I live? That question is the scary one. Recently, I was talking with a woman, maybe 75 years old, maybe older, I’m not sure. She was old though. I could tell she was old because her hands were gnarled with bulbous knuckles. Looking at her hands, I felt a sadness wash over me. Followed immediately by an acute jealousy, she had something I might not get: a long life. Then, I felt sad again. There are no guarantees in this life for any of us, but, having been though cancer, I feel acutely aware of this fact, and it scares me sometimes.
Beyond the worry and possibility of a shorted lifespan there
are other unknowns, specifically about my body: What is this body now? How does
it feel? What does it need the most?
My body is very different than it was a year ago. There are
scars. Too many, I think. Parts are missing, big parts. Important parts. I’m
heavier to. Medications that cured me also made me gain weight, kind of a lot
of it. On top of that, I ate whatever I wanted. When you’re in treatment for
cancer, and feel so shitty, sometimes simple things, like a chocolate croissant
and a nap, are the best part of your day. So I have curves now, the first one’s
ever.
Also, what can my body do now? There are risks, since lymph
nodes have been removed. I could contract swelling in my arm that will never go
away. At first I thought about that every day. Now, it hardly comes up, but
later in the fall when approximately 3.5 million leaves drop from the trees and
onto my lawn, I can rake only for a little while at a time. Because, I like my
arm the way it is now.
Raking in short stints isn’t so bad, not something that
really hits home. Menopause though? That hits right where it hurts. Did I mention
am 41 years old? The old ladies weren’t kidding about hot flashes. Those suck.
Cuddling is challenging at times because of them. My body runs hot, and having
a little critter on my lap, makes me break out in a sweat. There are other fun
and exciting things that happen to the female body during menopause. I will spare
you the details and just say, between that and the anti-cancer drugs I take, it
will be a miracle if I have any bones left by the time I’m 65.
The chemo induced neuropathy is still with me as well. Its
mild, but it’s still kicking around. I am still healing from the chemo, its clear. The damage
from those drugs was system-wide, but slowly, I’m healing. I can tell when I peddle
my bike as hard and as fast as I can. I feel energized, joyful even, because I
can move fast. I can tell when I’m dancing with Bryan, the Rumba never felt so
good. The foxtrot on the other hand, is a brutal dance. Either way though, I’m electric
and excited at joining the human race again.
I know that it has to be at my pace. I have to meet myself
where I’m at. I do what I can to listen to my body. Push myself, just a little,
to get my body moving. Nourish when needed and sleep when tired. Hugs are good
to, the best actually.
Knowing all this, I’m taking my cancer-free self, back to
the support group. I’m going to sit there, with my head full of hair, and kvetch,
complain and most likely cry some. I’ll keep going to the group to, until that
deep down part of me finally gets the cancer-free memo.
Until I know what healthy
means for me as my body is now, after having been on this long journey.
I just want to say how much I admire how you have approached your battle this past year. Positive and upbeat, yet honest and emotional. I'm grateful to you for sharing what you have because it helps those of us with other challenges push through and continue to live our lives. It helps those of us who are healthy to count our blessings and be thankful for the little things in life. My mom was diagnosed at 47, and is now 74. Still has her battles, especially the past 8 years, but like you, her positive outlook and attitude has gotten her a lot farther than I think she ever thought. I know I worry each day about the what ifs...for her, for me, my sister, etc., but I know that's a lot different than the what ifs you may get caught up in worrying about having been through this battle personally. Thank you for your honesty, and I hope that part of you gets that "cancer free memo" soon. xoxoxo Sue
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